Individuals who are at least 18 years old and have Stargardt’s Disease are invited to participate in a study by Jennifer Bryan in the Department of Psychology at the University of Houston. The study is designed to gain insight into the life experience of those with Stargardt’s, one of the most common forms of juvenile macular degeneration.
This project involves completing three questionnaire packets and three brief writing sessions. The packets will take approximately 60 minutes each to complete. After completing the survey at home, participants will receive their topic for writing. There will be two follow-up surveys three and six weeks after the final writing session. Upon full completion of the study, participants will be entered in a lottery for a prize basket.
If you meet the qualifications and would like to participate, please click the following link: https://www.surveymonkey.com/s/PHFTSLL.
This project has been reviewed by the University of Houston Committee for the Protection of Human Subjects, which can be reached at 713-743-9204.
I would greatly appreciate talking to someone involved in the adult Stargardt study. I am working with 2 teenagers who are questioning if they will need braille later in life or not. I told them that I would find out as much information from adults with Stargardts that I could find out.
Thanks,
Rebecca